Resources
The Tout-Terrain
The Tout-Terrain
Epilepsy and School : You are not alone on your educational journey; we can be a part of your allies!
You are not alone in this process
When someone lives with epilepsy, the entire community around them deserves to be informed, supported, and empowered.
Tout Terrain was specifically designed to support students, parents (if applicable), teachers, and school staff. The goal is to create a small community that will play an essential role in the student’s well-being and success throughout their academic journey.
This program brings together five complementary services designed for all students and their families in the Montérégie, Haute-Yamaska, and Brome-Missisquoi regions.
Our approach is based on a deep conviction: understanding epilepsy is the key to managing it better.
By sharing our knowledge and expertise, we aim to create a supportive school environment where every student can thrive, surrounded by confident and reassuring people.
A podcast by Épilepsie Montérégie
Growing Up with Epilepsy
There are a thousand ways to live with epilepsy. There are as many different journeys as there are individuals, families, schools, and professionals who, every day, learn to cope with epilepsy—with its fears and questions, but also with its strengths and victories.
To give a voice to these realities, Épilepsie Montérégie is launching *Growing Up with Epilepsy*, a podcast that explores, episode by episode, what it means to live, cope, and grow up with epilepsy.
We welcome parents, young people, a teacher, a nurse practitioner, a neurologist, and our team, who share their personal experiences, expertise, and lessons learned with sincerity. Our goal: to demystify, inform, and above all, reassure. Because behind every diagnosis, there is a family moving forward, one day at a time.
A Team Ready to Listen
Sylvain Desruisseaux
Liaison Officer – Responsible for the Tout-Terrain Program
Drawing on his expertise in education, Sylvain serves as a liaison between the student, the family, the nurse (if applicable), and the school.
Karine Parent
Liaison Officer – Responsible for the Tout-Terrain Program
Drawing on her experience working with children and providing on-site support, she serves as a liaison between the student, the family, the nurse (if applicable), and the school to foster seamless collaboration and provide practical support.
Èva Perreault-Gagnon
Awareness and Multimedia Officer
Passionate about sharing knowledge, Èva adapts her approach to each age group.
Anie Roy
Director and Psychosocial Worker
Dedicated to supporting families, Anie guides you with empathy and professionalism.
Services
The 5 Services of the Tout-Terrain Program
Our mission with this program is to make the educational journey as smooth as possible—and as quickly as possible—for students living with epilepsy.
Information: info@epilepsiemontergie.org
Parents, you can register your child by completing the form below.
1. School Support
For Parents and School Staff
Navigating the school system while living with epilepsy can seem complicated. Sylvain is here to support you through this process. Thanks to his experience as an educator and school principal, he understands the realities of the school environment and knows how to build strong bridges between families, school nurses (if applicable), and educational teams.
What We Offer:
- Supporting students throughout their entire academic journey;
- Liaison with school staff;
- Personalized support for families as they navigate the process;
- Close collaboration with the healthcare community.
Because every student has the right to a supportive and caring school environment.
2. Awareness Workshops in Schools
To Demystify Epilepsy in the Classroom
For Primary School: Lou’s Magic
Meet Lou, our beloved puppet who lives with epilepsy! Accompanied by Èva, Lou visits classrooms to share her daily life with simplicity and kindness. Children naturally open up to her, ask their real questions, and gently come to terms with epilepsy.
Why Does Lou Make a Difference?
- She encourages the expression of emotions without judgment
- She transforms learning into a playful moment
- She reassures both children and adults
For High School: Authentic Exchanges
Èva facilitates workshops adapted to the concerns of adolescents, addressing the social, emotional, and practical aspects of epilepsy.
The TONIC groups: A unique space where adolescents and parents can exchange separately after watching our mini-series. Each group can thus express its specific concerns in a climate of trust.
General Adult Education, Vocational Training, CEGEP, and University
Awareness workshops tailored to the needs and concerns of adults, addressing the social, emotional, and practical aspects of epilepsy.
3. Kits for Schools
Practical Tools Readily Available
We have created five complete kits designed to make your life easier. Each guide contains reliable information, practical advice, and answers to the most frequent questions.
Our Available Kits:
- Epilepsy and Daycare – For toddlers and their educators
- Living with Epilepsy in Elementary School – Adapted to the elementary school environment
- Living with Epilepsy in Day Camps – For worry-free vacations
- Living with Epilepsy in High School – Addressing the challenges of adolescence
- TONIC: the kit that recharges – Specialized resources for families of teens
Practical Guides to Better Cope with Epilepsy
4. Family Support
Because support is for the whole family.
Living with epilepsy sometimes brings up emotions that are difficult to accept and manage. Anie, our psychosocial worker, offers a caring space where every family member can express their concerns.
Tailored Support for:
- Parents Seeking Support and Strategies
- Siblings Who Also Need to Be Heard
- The Child Living with Epilepsy and Their Concerns
Anie shares tools with you that make daily life easier and strengthen the confidence of the whole family. You don’t have to carry this burden alone.
5. Matching Service
Building Authentic Connections
Sometimes, nothing replaces shared experience with someone living a similar situation. Our matching service brings together people who wish to exchange, share their tips, and support each other.
Why Matching?
- Adapted to the realities of our vast territory
- Flexible According to Your Availability
- Based on similar situations (age, life stage, specific challenges)
- A Space to Vent, Exchange, and Help Each Other
Building authentic connections is a way to break isolation.
Our Commitment to You
To support and facilitate, as quickly as possible, the educational journey of students living with epilepsy.
We firmly believe that epilepsy does not define a student. With the right information, appropriate support, and a caring community, every student can reach their full potential.
Ready to Team Up With Us?
Every question deserves an answer, every concern deserves to be heard. Please write to us to discuss your specific needs.
